About Us

The Crohn's in Childhood Research Association, CICRA, is dedicated to improving the lives of children and young people affected by Crohn's Disease, Ulcerative Colitis and all forms of Inflammatory Bowel Disease (IBD). Our mission is to invest in research, support families, and raise awareness about these chronic conditions to foster a better future for the young patients we support.

Founded in 1978, CICRA emerged from the need to address the unique challenges faced by children diagnosed with IBD. For over four decades, we have been at the forefront of supporting paediatric IBD research and have played a pivotal role in advancing our understanding and treatment of these illnesses.

What we do

• Research Funding: We provide grants to pioneering research projects that seek to unravel the complexities of Crohn's Disease and Ulcerative Colitis in children. Our funding focuses on innovative studies that aim to improve diagnosis, treatment, and ultimately find a cure.
• Family Support: CICRA offers a range of resources and support networks for families dealing with the impact of IBD. From educational materials to family-friendly events, we strive to empower families with knowledge and a sense of community.
• Awareness and Advocacy: We engage with healthcare professionals, policymakers, and the public to advocate for better care and understanding of the challenges faced by young people with IBD.

What we’ve achieved so far

Over the last 45 years, we have invested over ten million pounds in vital research projects, as well as funded training fellowships so that doctors can specialise in paediatric gastroenterology.

• We funded the first Paediatric Gastroenterology lab in the UK.
• 62 research projects have been completed, improving worldwide understanding of IBD and how to manage it.
• New and more effective treatments have been identified, including enteral feeding which is still used as a first line treatment for Crohn’s
• 27 doctors have completed the fellowship programme, meaning there are more specialists treating and managing IBD in children. This leads to earlier diagnosis and better outcomes.

Every day, our staff are available to offer advice, guidance and emotional support to families affected by IBD. In 2024, we distributed 37,399 information booklets to families, schools and professionals seeking support. We are so grateful to our supporters who have enabled us to carry out this vital work.